I have Peyronies Disease.

S

Super

Well-known member
I have been gone for a while, I have been diagnosed with Peyronies Diesease. I need help. I really dont know what to do about this.
 
I have had a lump too, did not go to the doctors tho, mine was made better through hanging and jelqing. It use to curve to the left, so I would jelq against it to the right. Also changing the way you position it in your pants, I would position it to the right.
 
Pandora;286591 said:
I have had a lump too, did not go to the doctors tho, mine was made better through hanging and jelqing. It use to curve to the left, so I would jelq against it to the right. Also changing the way you position it in your pants, I would position it to the right.
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I have the lump in the left side, which is making it curve to the left. This whole thing just started one day..I got an erection and there it was. Its really horrible. I dealt with it for about a month. Then I called my urologist, and bam, there came the diagnosis. I tried jelqing too the right. But its like there is a indent in the left side of my penis. And then it curves to the left. I started at 800mg of Vitamin E today and will work my way up to 2000mg a day
 
The problem that I am having is that were the curve is it really hard as a rock and hard to bend the other way.
 
Supra, I want to talk to you. Peyronies can be licked! It is not the end of the world. You can straighten it. If, in fact you do have it. What are you like flaccid? PM me. GS
 
Hey, Supra! Sorry to hear about your problem, buddy. : /

I never thought this could happen out of the blue, this is news to me. Many men have this and I thought they were just born with it.

Also... I always thought it was just an aesthetical problem but for your worries I'm now guessing it's not. :(

In the DLD Peyronies program he mentions a guy named Idaho, maybe you should look for him or even PM DLD.

Hey man, you're a legend here, I'm pretty sure you'll overcome this. :)

Regards
 
Supra;286644 said:
I have the lump in the left side, which is making it curve to the left. This whole thing just started one day..I got an erection and there it was. Its really horrible. I dealt with it for about a month. Then I called my urologist, and bam, there came the diagnosis. I tried jelqing too the right. But its like there is a indent in the left side of my penis. And then it curves to the left. I started at 800mg of Vitamin E today and will work my way up to 2000mg a day
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Yeah I see, that the right CC is longer than the left CC too, you should concentrate on stretching just the left CC to try and make it the same length as the right CC, but you also need to get rid of the scar tissue the lump with jelqing, it takes time, but you can do it man, I did:)

Get some Vitamin E lotion for jelqing as well.
 
Just out of curiosity to Supra.....does this run in your family? Or do you think it could be a byproduct of a certain thing u may have tried, injury during sex, pe?
 
alwaystrying;286694 said:
Just out of curiosity to Supra.....does this run in your family? Or do you think it could be a byproduct of a certain thing u may have tried, injury during sex, pe?
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I wish I knew, I stoped Penis Enlargementing 3.5 years ago. I moved on to FR. Then one day 1 month ago this whole thing happned. I got an erection and there it was.
 
man im sorry to hear this....there are ways to combat this. i only asked to try and learn something y'know, maybe if there were any signs of this coming on? sounds like it just happened very abruptly tho
 
Even my doctors dont know what to say. Now Im trying to get back into these stretches and routines DLD has. Its very difficult. I built the penis I wanted and was just trying to cover it with some foreskin, and here we are.
 
some thoughts.

potaba
topical vitamin e, possibly with a light concentration of dmso.
elemental sulfur
vitamin e orally, around 1000mg, natural is best, rahter than synthetic.

wish you the best supra.
 
kushextender;286744 said:
some thoughts.

potaba
topical vitamin e, possibly with a light concentration of dmso.
elemental sulfur
vitamin e orally, around 1000mg, natural is best, rahter than synthetic.

wish you the best supra.
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Can you exagerate a bit more on the potaba, and elemental sulfer.?.I am not familiar with these products. Thanks for he help.
 
Today is my second day of doing the exercises, I am getting really fatigued quickly and very sore afterwards where the curve is. I tried the exercises that DLD has on the paysite.
 
I think an [words=https://shop.mattersofsize.com/products/sizegenetics-penis-extender]extender[/words] is supposed to help as well, so wear one as many hours as possible.
 
Supra - your work has always been a great resource to me as well as inspiration. If anyone can get throught this, you can.

My Best
Airshy
 
Supra, I have answered your PM and will take some time to speak about this peyronies issue here. I don't agree that you need to do these exercises erect. You need to be able massage your flaccid penis and massage the spongy area, if you have one, which is the scar area where the damage happened. I don't know the extent of your "damage". Mot doctors know so little about peyronies that they are not able to give a correct diagonsis. Vitamin E will help, only because it keep the blood thin and allows the penis to have a better circulation. All these other so called injections and pills don't do anything. I know no one who has really recieved any help. I used a pump for a while to help straighten. But, I had to order a small tube so that it would fill the tube an not allow the big expansion. I did the pumping for about a year. That is where I got all my foreskin restoration. You need to use very low pressure if you pump...3-5 pounds max. Even if you want to use more, don't.

flaccid twists help to massage the spongy area if you have a spongy area. Don't panic and don't get discouraged. There are too many things to help this and you will overcome it. I do know what can be done and I had it bad!

GS
 
Supra, I have answered your PM and will take some time to speak about this peyronies issue here. I don't agree that you need to do these exercises erect. You need to be able massage your flaccid penis and massage the spongy area, if you have one, which is the scar area where the damage happened. I don't know the extent of your "damage". Mot doctors know so little about peyronies that they are not able to give a correct diagonsis. Vitamin E will help, only because it keep the blood thin and allows the penis to have a better circulation. All these other so called injections and pills don't do anything. I know no one who has really recieved any help. I used a pump for a while to help straighten. But, I had to order a small tube so that it would fill the tube an not allow the big expansion. I did the pumping for about a year. That is where I got all my foreskin restoration. You need to use very low pressure if you pump...3-5 pounds max. Even if you want to use more, don't.

flaccid twists help to massage the spongy area if you have a spongy area. Don't panic and don't get discouraged. There are too many things to help this and you will overcome it. I do know what can be done and I had it bad!

GS
 
You know it's stuff like this (German Stallion's post) where I see people genuinely wanting to help in which makes me realize what a good bunch the Penis Enlargement community is. I find on average (aside from the drive by punks) that most are here to help each other, which is why I keep coming back. Best of luck to Supra and his new journey, I am sure he will become very knowledgable about this and overcome it. Motivation is everything, and from I have read this guy's got it, so there is no doubt in my mind he will beat this thing out.
 
Supra-

I meant fundamental sulfur, which i believe is also known as msm. heres a copy of what it says:

"Very popular and used in almost all plans. Alters the crosslinking process in collagen, thus reducing scar tissue, and makes scar tissue more flexible and soft. The only product PDI has found to contain 100 mg of vitamin C and 25 mcg of molybdenum, which are included in this tablet to assist sulfur absorption and metabolism in the body."

POTABA- this is p-aminobenzoate potassium. it is by prescription only, and i have been trying to get my hands on some for quite a while. you wont find it online without a script, so best bet is to go get it from that doctor you talked with. hell probably say it doesnt work, but why not give it a try? it is supposed to soften plaques and scar tissue... read up...

Jacob's lab makes lots of dmso products, and one or two specifically for P.D. dmso in comnination with vitamin e, and msm, or other should be of benefit.

Combine with excercises and that seems like the best route to go. If you get potaba, I will pay you for a months worth...He should supply you with up to 3 months, it comes in powder packets of 2 grams, and 500mg tablets. you would need to take a decent amount for effect, something along the line of 4-8 grams a day.
 
Im going to PM you a site to look at. By no means am I supporting the site, but it should give you some ideas of other options. Curious, what is your angle of erection?
 
I have a break in my CC on the left hand side of my shaft were the curve begins. I also havea hard lump in the same spot while flaccid. I can feel it while I massage it. I have electric pump and strait wall cyclinder tube. I feel the lump deep inside my penis, mabey even in the CS. Will using my bib hanger help any?
 
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Supra;286828 said:
I have a break in my CC on the left hand side of my shaft were the curve begins. I also havea hard lump in the same spot while flaccid. I can feel it while I massage it. I have electric pump and strait wall cyclinder tube. I feel the lump deep inside my penis, mabey even in the CS. Will using my bib hanger help any?
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I used the pump method of using a smaller cyclinder than what you would normal buy, just like GS at first. But then I ditched it for the Bib hanger and a Jez [words=https://shop.mattersofsize.com/products/sizegenetics-penis-extender]extender[/words], I had the lump in flaccid like you describe, I would say the Bib and [words=https://shop.mattersofsize.com/products/sizegenetics-penis-extender]extender[/words] must have fixed my lump, but mine was no where near as bad as GS's.

I try to do pumping and hanging together but it did not work I injured myself, that's why I ditched the pump.
 
spinner2-

I have that potaba, from city chemical, and I just cant get myself hyped enough to try a "chemical". It came in a large white bottle, and is just a yellowish dust with the label written on it. Too scary for me, although if Supra was diagnosed with peyronie's which he said he was by his doctor, than it should be no problem at all for him to get it, after giving some reasoning with the doc. I would take potaba if it came from a pharmacy in a nice little package.
 
remiii;288024 said:
did "Penis Enlargement" damage your penis? be honest . you said you were not born with it right?
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More like "foreskin enlargement" it seems.

Supra, knowing that you're young, that SUCKS. However, never forget what you know. If anyone can fix your penis it'd be you. My heart goes out to you; you should not have to be dealing with this shit. Just keep on a steady routine as has been outlined by GS and others who have gone through this. Best of luck.

You'll get through it. ;)
 
Supra, don't get too excited about Potaba, that doens't really give any answers either. I can tell you 50 men who took it and all it did was make them sick to the stomoch and did not help Peyronies. Same way with shots of something that begins with V. GS
 
Your speaking of Verapamil I believe its called. I have heard similar things on potaba as well, but worth a shot. As far as Verapamil, I would stay clear as injections create scar tissue as well, which is the last thing you want. I heard of people getting tons of shots and it getting worse. They do have this electronic delivery system though, which can deliver it, but forgot the name... expensive though.

Take care.
 
When you visit with or email people who have peyronies disease and have taken the Potaba and the verapamil shots, the general attitude is that nothing has helped. The only thing that I know that does help is the Penis Enlargement exercises. I know a lot of men who do nothing and they get nothing. Supra is taking it easy and letting his schlong heal and will see what the results are. Hopefully he will heal without scaring and will not have any damage. I agree with Spinner2 that hanging with Peyroneis might do more damage. I don't know how I would use DMSO on my penis? I have seen some thread and posts on this but really, the immediate smell or taste in your mouth of Garlic is more than i want. Also, there is a "heat" generated from DMSO, so I don't know how to deal with that so have not tried DMSO at all. Any advice or experience with DMSO would be appreciated. GS
 
Hey Supra
Real sorry to hear about your problems, but I am glad to see that you made it back from the war zone. I'm turtle, you know my real name, but on this forum I have to go by turtlechan. There seems to be a turtle who is never here, and it is clearly not me. I read about your problem from a post on the other forum, and people were very concerned with how you were doing. I know that we have chatted many times on MSN before, but my stupid computer is making life difficult. I tried to get back on to MSN, but, of course, it acts like I have never been there. Obviously, I don't have a connection were you and I can link up. Send me a PM with how we can link up, hopefully my stupid computer won't fight me to much.
turtlechan
 
Progress Report

My problem is starting to get better, my curve is 20 degrees less, and the pain is gone, still more work to be done, but thx to GS and you guys and others I am on the right track.
 
How is everything supra? Any more progress or pics? This is very scary to me and really makes me wonder if Penis Enlargement could have played a part in you developing this.
 
Im still dealing with it, I really dont know how I got it, I have been slacking onff lately with my routine and need to get back on it. I am going to start DLD routine and get some more help from GS. I am about to start a big ALT MED approach as well. We will see how it goes. Keep you posted.
 
Supra;286585 said:
I have been gone for a while, I have been diagnosed with Peyronies Diesease. I need help. I really dont know what to do about this.
Click to expand...


Get about 60 to 80% erect and with your right hand jelg over hand to the right.

Always jelg that way. Every 10th jelg or so hold for about 20 seconds.

Its gonna take awhile but it should start correcting.
 
The only reason why I dont want to jelq is becuase I dont want to develope a turkey neck again. I notice than happens. I already had surgery for that. Any thoughts?
 
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Supra;305651 said:
The only reason why I dont want to jelq is becuase I dont want to develope a turkey neck again. I notice than happens. I already had surgery for that. Any thoughts?
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Wear a leather ball strap or stack some Cable Clamps on the scrotum.
 
Yo supra ... I have a suggestion. Its kinda based on those 'Paradise bends' I thought up recently for those who want a curve, like the upward so it hits the G-Spot or whatever.

Ok well if you read that thread which is in my sig than apply some of that theory to your situation but do the action against your bend ... so go towards the right and HOLD that position for aslong as you can ... try and do it clamped but dont be really engorged, its just to keep blood inside ... maybe use viagra or the like. KEEP ERECT and just under 100% if you can and bend against it but HOLD ... might be able to bend it so your penis is straight when your doing it ... if so GREAT ... hold that position like that until the erectionm subsides and than do it again.

This should overtime encourage the penis to grow back in the shape it was.

I also understand with the jelqs and that fucking pain in the ass turkey neck ... can you send me ANY information/links to places that do the operation.

cheers man and glad to see you around.
 
Supra I to have started to notice that I was getting a little curve I was getting worried about it until I started to use my [words=https://shop.mattersofsize.com/products/sizegenetics-penis-extender]extender[/words] again and it subsided a little but it is still there. But I was speaking to a surgeon not long ago and he said that if you catch it in its early stages warm massages will definitely help massaging is recommended in most cosmetic surgeries now as a way to prevent scar tissue developing from under the skin. The other thing he recommended was using cortisone cream only on the side with the curve and massaging that in.
 
Supra;286644 said:
I have the lump in the left side, which is making it curve to the left. This whole thing just started one day..I got an erection and there it was. Its really horrible. I dealt with it for about a month. Then I called my urologist, and bam, there came the diagnosis. I tried jelqing too the right. But its like there is a indent in the left side of my penis. And then it curves to the left. I started at 800mg of Vitamin E today and will work my way up to 2000mg a day
Click to expand...
This is what i was talking about Dld, where supra said he got Peyronies.
 
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