Went Years With Bad Heart. Transplant in the future

keepingitbig

Active member
I've been on this forum for years ever since 2010, however despite being healthy and active the gene of enlarge heart got me. Now I'm sitting in Charleston Heart hospital either waiting for transplant or not. I've worked tons of hours for the last few years, sometimes 60 to 70, but that wasn't the issue at all. The issue is due to my family line, I developed heart failure. Seen the first sign in 2023 when I couldn't breathe right with my mask. In Jan I notice I couldn't move as fast as I should. In Aug I developed fluid in the lungs and went into ER. Said I have heart failure and if I didn't come here in Charlestown I'd be a goner. I'm looking for support from friends I knew in the past due to depression I'm now in, it snuck back on me. Just to think b4 August I was living good off life, had goals, plans to move forward and now I'm dependent on staff for mobility. In the past I never needed help! I built my first PC on my own, put in my own networks, very motivated, learned everything on the job as a manager on my own too. Sucks how life is. Pray for me.
 
Welcome back brother. I've always bumped some of your threads in the past. So Sorry about the situation you are in. I promise to put you in my prayers. You are going to overcome. Prayers for you brother.
 
I've been on this forum for years ever since 2010, however despite being healthy and active the gene of enlarge heart got me. Now I'm sitting in Charleston Heart hospital either waiting for transplant or not. I've worked tons of hours for the last few years, sometimes 60 to 70, but that wasn't the issue at all. The issue is due to my family line, I developed heart failure. Seen the first sign in 2023 when I couldn't breathe right with my mask. In Jan I notice I couldn't move as fast as I should. In Aug I developed fluid in the lungs and went into ER. Said I have heart failure and if I didn't come here in Charlestown I'd be a goner. I'm looking for support from friends I knew in the past due to depression I'm now in, it snuck back on me. Just to think b4 August I was living good off life, had goals, plans to move forward and now I'm dependent on staff for mobility. In the past I never needed help! I built my first PC on my own, put in my own networks, very motivated, learned everything on the job as a manager on my own too. Sucks how life is. Pray for me.
may God make it easy for you and grant you your health back, we're here for you brother
 
Welcome back brother. I've always bumped some of your threads in the past. So Sorry about the situation you are in. I promise to put you in my prayers. You are going to overcome. Prayers for you brother.
Ty. Aug really hit me like a ton of bricks. I never needed meds in my life! Always worked out even on the job. Yes I have my fried chicken and macaroni with sweet tea becuz I'm in the south, lol. But never like this. Wish I caught early, but even if I did, it would've progressed further as the docs said.
 
Ty. Aug really hit me like a ton of bricks. I never needed meds in my life! Always worked out even on the job. Yes I have my fried chicken and macaroni with sweet tea becuz I'm in the south, lol. But never like this. Wish I caught early, but even if I did, it would've progressed further as the docs said.

Believe me brother, you are going to overcome this and come out stronger than before. Don't be depress, things will get better.
 
Believe me brother, you are going to overcome this and come out stronger than before. Don't be depress, things will get better.
Ty very much. Felt like nobody cared becuz I use to brush people off that I'm ok. They took me off the swan today and now I can move around like semi normal. Yesterday we walked around and seen the Charleston view it was nice with all the boats and water around. I masked for many years by working more at the job as a manager and at the end of the day would lock myself in my room daily eating fast food, air fried chicken and Milo's sweet tea. 70 percent of my diet was healthy though! I just love those cheat days lol. Never told anybody about the bad cough or cold feet, or feeling freezy when it was warm or hot a sign of heart failure.
 
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Sorry to hear of your medical issue brother. We will send prayers to you from the brotherhood for speedy recovery. Keep us in the loop of your health.
 
Ty you all. I alaways believed in God and changed my life despite things of the past the last two years. One guy thought I was dead already when I notified of my position. At the end of the day it shows who ur true friends are
 
Ty you all. I alaways believed in God and changed my life despite things of the past the last two years. One guy thought I was dead already when I notified of my position. At the end of the day it shows who ur true friends are
Gods plans for you will prevail over these issues. I will always pray for you 🙏🏽
 
I'm back guys. They put me on a heart device called the Lvad. I only take 3 meds prescribed for my heart. The surgery happened on November the 12th and it was a success. I was out pretty quick and the recovery was quick too. Crazy how life works, eh? My goal now is to keep my weight down and if everything goes well, my heart can recover. However, I'm still going to be on the transplant list for now, but I'm praying that my heart recovers enough function that I won't need the device anymore AKA a bridge to recovery.


For almost 5 months, I couldn't eat or drink without throwing up, even after surgery. Feb the 9th was the first time I drank and ate without nausea or vomiting it was great. I'm now able to enjoy my favorite foods, minus the sodium and tea of course, lol. I have been down ( depressed ), but I'll soon be talking to a psychologist about my mental health and maybe they'll put me back on my meds for both ADHD & depression. Can't bathe or swim at the moment due to the Heartmate 3, but the good thing is that the rest of my body is healthy enough for a Transplant.


Either I get it or if my heart function comes back I'm all in.

Thanks for the support, because I had very few of it save my parents.
 
I'm back guys. They put me on a heart device called the Lvad. I only take 3 meds prescribed for my heart. The surgery happened on November the 12th and it was a success. I was out pretty quick and the recovery was quick too. Crazy how life works, eh? My goal now is to keep my weight down and if everything goes well, my heart can recover. However, I'm still going to be on the transplant list for now, but I'm praying that my heart recovers enough function that I won't need the device anymore AKA a bridge to recovery.


For almost 5 months, I couldn't eat or drink without throwing up, even after surgery. Feb the 9th was the first time I drank and ate without nausea or vomiting it was great. I'm now able to enjoy my favorite foods, minus the sodium and tea of course, lol. I have been down ( depressed ), but I'll soon be talking to a psychologist about my mental health and maybe they'll put me back on my meds for both ADHD & depression. Can't bathe or swim at the moment due to the Heartmate 3, but the good thing is that the rest of my body is healthy enough for a Transplant.


Either I get it or if my heart function comes back I'm all in.

Thanks for the support, because I had very few of it save my parents.

Good news brother. You are going to have 100% recovery by the grace of God.
 
Thank you for bumping my threads. The sad reality is that CHF affects me more than the average person. No matter if you're fit or not, It will affect you if you have a gene. My brother in Law just died recently due to CHF and pneumonia. He constantly had to go to the doctor to drain fluid. It hit me really hard. I was in the bed all day and got severely depressed than my close cousin was hit with a heart attack that almost took him out. Luckily they put a stent in him and he's okay. You guys are right, folks care little about your wellbeing today. The bible is right about men waxing colder and colder & having no care for their fellow man.
 
Thank you for bumping my threads. The sad reality is that CHF affects me more than the average person. No matter if you're fit or not, It will affect you if you have a gene. My brother in Law just died recently due to CHF and pneumonia. He constantly had to go to the doctor to drain fluid. It hit me really hard. I was in the bed all day and got severely depressed than my close cousin was hit with a heart attack that almost took him out. Luckily they put a stent in him and he's okay. You guys are right, folks care little about your wellbeing today. The bible is right about men waxing colder and colder & having no care for their fellow man.

You are welcome brother. Everything is going to be alright.
 
You are welcome brother. Everything is going to be alright.
Thank you. I have to do one more operation before being on the transplant list, but my hope is to keep my native heart and get better. Either my heart gets better or not I'll be on meds my whole entire life. Now I'm on Entresto, Spirolactone and Jardiance. Ever since then my BP has been regulated well. I'm glad to see the site is still going and great people around to help others.
 
Welcome back brother. As long as your heart is still ticking, there's always hope for it to continue in progress in a positive manner.

The device will monitor you,band I know you can do much strenuous activities. However, it doesn't mean you can't progressive work to the point your native heart can adopt and adapt to the new stress management. We will continue to pray for your miraculous recovery brother. Keep us posted on your conditions from time to time.
 
I'm back guys. They put me on a heart device called the Lvad. I only take 3 meds prescribed for my heart. The surgery happened on November the 12th and it was a success. I was out pretty quick and the recovery was quick too. Crazy how life works, eh? My goal now is to keep my weight down and if everything goes well, my heart can recover. However, I'm still going to be on the transplant list for now, but I'm praying that my heart recovers enough function that I won't need the device anymore AKA a bridge to recovery.


For almost 5 months, I couldn't eat or drink without throwing up, even after surgery. Feb the 9th was the first time I drank and ate without nausea or vomiting it was great. I'm now able to enjoy my favorite foods, minus the sodium and tea of course, lol. I have been down ( depressed ), but I'll soon be talking to a psychologist about my mental health and maybe they'll put me back on my meds for both ADHD & depression. Can't bathe or swim at the moment due to the Heartmate 3, but the good thing is that the rest of my body is healthy enough for a Transplant.


Either I get it or if my heart function comes back I'm all in.

Thanks for the support, because I had very few of it save my parents.
welcome back brother, had a thought about you the other day, im glad your surgery went well, i pray to God for your well being and health
 
Still praying for you. God will get you to a good place. Put all of your pain in the hands of Jesus. You will recover.
 
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